AlzAuthors was founded in 2016 by four daughters of dementia who met over the internet because of their books, and formed a friendship and a mission to create a space where caregivers can find solid support, and those who share their stories can find the proper audience. I am pleased to be a member of AlzAuthors. Continue reading
By Ann Richardson
Some years ago, I was taken to a hospice by a friend, who happened to be doing an errand. I immediately felt that this was the kind of tranquil place where I wanted to spend time. Soon after, I began to volunteer at a local hospice every Saturday afternoon. I did so for four years. Continue reading
It used to be that nine months or so after a traditional wedding, couples would announce they were pregnant. Not with Alan and me.
Nine months after we were married, and before our first honeymoon year was over, we were instead adjusting to the symptoms of Alan’s newly diagnosed dementia.
He passed less than five years after that diagnosis. He was 67 years old, I was 59. Continue reading
I’ve been living with early onset Alzheimer’s disease for over seven years. Soon after my diagnosis, God kindled within me a deep desire to do something positive for people who were struggling with this disease. I wanted to help them maintain their faith as they face the challenges of living with early to mid-stage dementia. Continue reading
By Tracey Shorthouse
When I was first diagnosed with early onset Alzheimer’s Disease and Posterior Cortical Atrophy in 2015, I wanted something to focus on. All my life I have helped others through being a nurse, and I still wanted to do that.
The brain needs stimulation to keep going, so after the initial shock at being diagnosed and the relief that it wasn’t MS as what I first thought and feared, I took stock of what I could still do, and if I couldn’t do something I persevered until I relearned old skills. I had an occupational therapist who used Continue reading
This book was my legacy for the next generation, putting in writing as much as I could about my experience helping caregivers of dementia patients.
My mother, grandmother and aunt all died from a type of Dementia, mostly Alzheimer’s. Continue reading
By Karen B. Kaplan
Perhaps it is not often that you come across science fiction that is (1) gentle and not full of weapons and nasty robots, and (2) includes a character who is one of the first with dementia to get cured of the disease. There are so many other aspects of reality to ponder, such as how robots might help or hinder grievers, it is a wonder that science fiction writers have not provided more material on such things. (Have you ever noticed that the Star Trek crew does not include a spiritual counselor?) As a healthcare chaplain, I have been curious about what it might be like to be cured of Alzheimer’s or other forms of dementia. Virginia Boyden, financial planner of the Continue reading
How a Long-Distance Caregiver Learns to Cope
When the memory thief first visited our family, we didn’t think much about it. Mom was, after all, fully capable of caring for herself and she was in good health.
But gradually, ever so subtly, the memory thief began to take from her the basics of life: where she stored her pots and pans, how to read a recipe and produce the finished product, how to find her way home from the grocery store. Continue reading
It took a life-altering crisis to make me realize that despite having known my mom for 50+ years, I didn’t know who she was as a person in her own right. I had firsthand knowledge of many of her trials and heartaches, but that only gave me a one-sided view of what her life had been like, with many gaps. Continue reading
By Elaine Pereira, MA OTR/L CDC DP
My mother’s was a story that needed to be told. She was a kind, brilliant and talented woman all of my life until dementia took hold distorting her persona and leaving an agitated, bewildered and compromised person in its wake.
In what would be her final months, as my mother continued her rapid descent into Alzheimer’s clutches, her once strong voice faded away. Continue reading