Meet Linda Brendle, Author of “A Long and Winding Road: A Caregiver’s Tale of Life, Love, and Chaos”

CoverThe Accidental Author

by Linda Brendle

My goal in life was not to become a writer. I enjoyed writing when I was younger, and I toyed with the idea making a career of it until I received my first negative review from an English teacher. I don’t take criticism very well, and I took her comments very personally. Years later, though, after the sting of her rejection had faded, and especially when I became a caregiver, the need to express myself resurfaced.

Becoming a caregiver was not one of my ambitions either. When I was in the seventh grade and was asked to write an essay on “What I Want to Be When I Grow Up,” my choice of careers was not caring for my aging parents. However, when a loved one has a need, you step in to help. Then, whether by small increments as the need progresses, or all at once because of a catastrophic event, you realize that you have become a caregiver.

When I became a real hands-on caregiver, I often went to Aunt Fay for advice. She’s Mom’s younger sister, and she cared for both her mother and her husband for many years. One thing she told me was to keep a journal, because one day my experiences might be of help to someone else, and I took her advice. I didn’t write every day, but after a particularly trying episode, I’d write about it and post it on Facebook. It was a safe way to vent, people responded positively, and I was encouraged to continue to write.

Later, my husband David and I bought a motor home and fell in love with the RV life. We were both retired, so we decided to take an extended trip through the southeastern part of the United States. Mom and Dad were living with us by then, so they were included in the plans. I knew that sharing a tiny living space with two people with Alzheimer’s, even two people I loved dearly, would lead to many trying episodes, so I took along several of my favorite pens and a spiral notebook.

Initially, I had no larger purpose in mind than to keep a record of our travels and perhaps gather material for a few Facebook posts. But situations that can be overlooked in a 2,600 square foot home are in your face in a 40-foot RV, and I began to pay closer attention to what was going on. I discovered more than I wanted to know about how much Alzheimer’s had taken from Mom and Dad. I realized that the simple tasks of taking a shower or shaving had become overwhelming, and simple decisions like ordering from a menu were impossible. I also recognized my own denial of our new reality.

By the time our journey was nearing its end, I began to wonder if my journal might be more than just a practice exercise, and visions of a book danced in my head. Once we were home and settled, I transcribed the handwritten manuscript onto my computer and polished it a bit. I asked my son, who had already published several books, to take a look at it. His response went something like this:

“You tell a good story, but where is your story? Why are you in Florida; why are you caring for your parents; and who is David?”

I went back to the keyboard, and for the next several years I edited again and again. I worked hard to break through the protective barriers I had built around my own feelings and to share the harsh realities of this horrible disease and the good, the bad, and the ugly of how I dealt with being a caregiver. When I finally went public, my readers said my story made them feel less alone. By exposing my own fears and failures, I had given them permission to accept their own shortcomings and to tell their own stories.

I began to write because it was personally therapeutic, but I continue to write because my stories touch others. People who have little joy left in their lives laugh with me at the antics of my sweet family; those who have shed an ocean of tears are encouraged when they discover that someone else understands; and some who feel like caregiving is a dead-end are inspired to keep living in spite of their situations. My book isn’t a best-seller, but as it helps ease the burden of those who are dealing with Alzheimer’s, it somehow gives a sense of meaning to Mom and Dad’s struggle – and that is all the success I could hope for.

About the book:

A LONG AND WINDING ROAD: A Caregiver’s Tale of Life, Love, and Chaos is the story of the chaos that happens when four people, two of whom have Alzheimer’s, spend fifty-three days in a 400-square-foot box on wheels.

Linda Brendle takes you on a roller-coaster ride of emotional and spiritual challenges that many families are facing right now. Co-dependency, mental breakdowns, and finding love after divorce are just a few of the issues weaved into this journey of caregiving.

About the Author

Head Shot - Leaning on Hand

I cared for my mother and father, both of whom had ementia, for fifteen years. After that season of my life passed, my husband David and I moved to the country where I work part-time at my church, garden when the notion strikes, tend to the whims of the feral cat who took over our home two years ago, and write about all of the above.

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Meet Linda Jenkins, Author of “To Helen With Love: A Memoir of a Daughter’s Caregiving Journey”

Cover To Helen With Love_By Linda Jenkins

After five years in the making, writing this memoir has been one of the most intense endeavors I’ve ever taken on, but well worth it.

While I was writing this memoir I discovered how much pain I still had deep inside of me. Pain from some of the experiences. Pain from not knowing what or how to deal with dementia. Pain of not understanding what caregiving entails. Pain from dealing with the healthcare field. Finally, pain when it’s all over. Continue reading

Meet Rick Lauber, author of “The Successful Caregiver’s Guide” and “The Caregiver’s Guide for Canadians”

Front Cover Shot - The Successful Caregiver's GuideBy Rick Lauber
What motivates a writer to write a book? It could be to share a story, educate/help the reader, or to entertain. I wrote both my books to support readers, raise awareness for a growing issue, increase understanding, and also to personally cope.
Before becoming a twice-published book author, I was a former co-caregiver (working with my two sisters) for my own aging parents (Mom had Parkinson’s disease and Leukemia while Dad had Alzheimer’s disease). This was not a job I was Continue reading

Mary Ann Drummond Shares Grandma and Me – A Kid’s Guide for Alzheimer’s and Dementia

By Mary Ann Drummond

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Meet Lauren Dykovitz, author of “Learning to Weather the Storm: A Story of Life, Love, and Alzheimer’s”

By Lauren Dykovitz

Learning to Weather the stormWhen I was just 25 years old, my whole world was turned upside down. My mom, who was 62 at the time, was diagnosed with Early Onset Alzheimer’s Disease. I remember that phone call like it was yesterday, although it has been over seven years now. I immediately felt completely alone and utterly lost. I didn’t know anyone my age who had a parent with Alzheimer’s. I had heard a few people talk about a grandparent who had died of the disease, but never a parent. I felt like I had nowhere to turn and no one to confide in, so I Continue reading

Meet Crissi Langwell, author of “Come Here, Cupcake,” a novel

By Crissi Langwell

Come Here CupcakeThe story of Come Here, Cupcake focuses on an aspiring baker, Morgan Truly, and the magical ability she’s discovered that allows her to infuse her baking with feelings. If she feels sad while baking, anyone who eats it will feel sad. If she feels happy, her baking will make people feel happy. And if she bakes while feeling romantic…well, you can guess what happens to anyone who tries it. This new ability, along with finding new love, is confusing enough. But adding to Morgan’s life changes is caring for her mother, Karen Truly, who is suffering from Alzheimer’s. Continue reading

Meet Richard L. Morgan, PhD

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By Richard L. Morgan, PhD

Listening to the needs of caregivers as a facilitator of Alzheimer’s support groups for many years, I became aware that care giving and receiving are opportunities for mutual spiritual growth.

Collaborating with gerontologist, Jane Thibault, Ph.D., we wrote, No Act of Love Is Ever Wasted: The Spirituality of Caring for Persons with Dementia. It is our belief that caregivers have Continue reading

Welcome Sisters Susan Kiser Scarff & Ann Kiser Zultner, Authors of Dementia: The Journey Ahead

51meTGNSoXLBy Susan Kiser Scarff

Within a year of my husband receiving his dementia diagnosis, I had a classic case of caregiver burnout. I couldn’t concentrate at work and most of my time was taken up with worrying about my husband’s uncharacteristic and impulsive behavior. I was petrified and intimidated about the future…overwhelmed with basic day-to-day activities. Further, I was apprehensive about making the transition from wife to protector, nurse, and mother. Continue reading