Without quite knowing it at the time, I began working on Her Beautiful Brain in 2004, when my husband and I made an award-winning documentary film about my mother called Quick Brown Fox: an Alzheimer’s Story, which has had a long life on PBS stations and remains in distribution through Women Make Movies, Amazon and other sites. Making Quick Brown Fox made me realize there was so much more of my mom’s story to tell than our film could contain. I also began to understand that, while I love filmmaking (which is what I do for a living), I have been a writer since I could hold a pencil and I longed to write much more than I was then writing as a filmmaker and occasional journalist. Continue reading
By Peggy Bushy
When Lewy Body Dementia entered my home, the world as I knew it began to shift, and I found myself in a constant state of confusion. My sweet mother, who lived in our home, was hallucinating, her stories and behavior were becoming more and more bizarre, and I had no idea why – neither did any of the doctors I consulted. Lost and alone, I could feel myself becoming a little more unglued with every passing day while I watched the family rules fly out the window one by one. “Wait! I depend on those family rules.” They may not be the same as the neighbor’s rules but they’re mine, they’ve been mine forever, and I’m comfortable with them.
By Judy Cornish
Seven years ago I left my law practice in Portland, Oregon, in search of a small town where I could semi-retire and practice elder law. I found the community I was looking for in Moscow, Idaho, but not retirement. Instead, I’m now the owner of two businesses, an author, and the creator of the DAWN Method, a unique approach to dementia care that helps families keep their loved ones at home with more comfort and less stress. It all began with a courageous, sweet, whitehaired woman who lived across the street from me. Continue reading
AlzAuthors was founded in 2016 by four daughters of dementia who met over the internet because of their books, and formed a friendship and a mission to create a space where caregivers can find solid support, and those who share their stories can find the proper audience. I am pleased to be a member of AlzAuthors. Continue reading
By Ann Richardson
Some years ago, I was taken to a hospice by a friend, who happened to be doing an errand. I immediately felt that this was the kind of tranquil place where I wanted to spend time. Soon after, I began to volunteer at a local hospice every Saturday afternoon. I did so for four years. Continue reading
It used to be that nine months or so after a traditional wedding, couples would announce they were pregnant. Not with Alan and me.
Nine months after we were married, and before our first honeymoon year was over, we were instead adjusting to the symptoms of Alan’s newly diagnosed dementia.
He passed less than five years after that diagnosis. He was 67 years old, I was 59. Continue reading
I’ve been living with early onset Alzheimer’s disease for over seven years. Soon after my diagnosis, God kindled within me a deep desire to do something positive for people who were struggling with this disease. I wanted to help them maintain their faith as they face the challenges of living with early to mid-stage dementia. Continue reading
By Tracey Shorthouse
When I was first diagnosed with early onset Alzheimer’s Disease and Posterior Cortical Atrophy in 2015, I wanted something to focus on. All my life I have helped others through being a nurse, and I still wanted to do that.
The brain needs stimulation to keep going, so after the initial shock at being diagnosed and the relief that it wasn’t MS as what I first thought and feared, I took stock of what I could still do, and if I couldn’t do something I persevered until I relearned old skills. I had an occupational therapist who used Continue reading
This book was my legacy for the next generation, putting in writing as much as I could about my experience helping caregivers of dementia patients.
My mother, grandmother and aunt all died from a type of Dementia, mostly Alzheimer’s. Continue reading
By Karen B. Kaplan
Perhaps it is not often that you come across science fiction that is (1) gentle and not full of weapons and nasty robots, and (2) includes a character who is one of the first with dementia to get cured of the disease. There are so many other aspects of reality to ponder, such as how robots might help or hinder grievers, it is a wonder that science fiction writers have not provided more material on such things. (Have you ever noticed that the Star Trek crew does not include a spiritual counselor?) As a healthcare chaplain, I have been curious about what it might be like to be cured of Alzheimer’s or other forms of dementia. Virginia Boyden, financial planner of the Continue reading