Jack Fussell, Fighting Alzheimer’s One Step at a Time

By Jack Fussell

On Janujack-fussellary 12th, 2013 I left Skidaway Island State Park near Savannah Georgia.  I traveled westward to Monterey, California. 2,594 miles were on foot pushing a jogging stroller.  458 miles were in a car. The reason I did this was to raise awareness concerning Alzheimer’s disease and raise money for the Alzheimer’s Association.

My dad passed away on June 30th of 2000. I was holding his hand. He died with Alzheimer’s disease. Prior to that, prostate cancer had taken a huge toll on both his physical and his mental health. He was a Continue reading

Meet Sandra Bullock Smith, author of “Trading Places, Becoming My Mother’s Mother”

TradingPlacesFinal-FJM_Mid_Res_1000x1500When I first started caring for my mother, I had no apprehension over how difficult the caregiving job would be. I am a strong, capable woman and my mother was gracious, sweet and appreciative. She tended to know the limitations age delivered to her. I tended to know everything. I had Continue reading

Michael Ellenbogen adds to the U.S. Congressional Record

Our friend, Michael Ellenbogen, who lives with early onset Alzheimer’s wrote the following piece which was added to the U.S. Congressional Record on September 21, 2016.Michael Ellenbogen

I am so thankful to be still here. Many of my friends who were living with dementia have died and others are no longer capable of speaking. I am one of the lucky ones. My Alzheimer’s is progressing very slowly. While that is good news it is also bad news. I will be forced to endure the worst Continue reading

Meet Tom & Karen Brenner, authors of “You Say Goodbye and We Say Hello: The Montessori Method for Positive Dementia Care”

you_say_jacketBRENNER PATHWAYS                      

Tom and Karen’s Story

The couple, a man and woman, stood just outside the door of the Scandinavian Home, arguing. The autumn leaves from the towering elms on the grounds of the nursing home swirled around their feet as the cold wind snatched their voices away.

“I told you, Tom, I don’t want to go back today. I am afraid of some of those people. You know how much I hate scenes and last Saturday Bridget yelled at us and told us that Continue reading

Meet blogger, Lisa B. Capp “The Day The Wheels Fell Off”

Screen Shot 2016-09-02 at 5.51.52 PMBy Lisa B. Capp

Everyone knows someone touched by dementia or Alzheimer’s disease.

We write, because today these diseases cannot be prevented, slowed or cured. We seek answers because their manifestation is often irrational, frightening and perplexing. And, as human beings, we continually reach from darkness to find light, whether you’re someone living with dementia or you’re caring for a loved one with the disease. Continue reading

Meet Arthur Levine, author of WHAT A BEAUTIFUL MORNING

ARTHUR LEVINE HS

Last night I lit a Yahrzeit candle for my father, who’s been gone for two years. And I decided, at the last second, that rather than sing a traditional prayer, I’d just sing a few lines from one of his favorite Broadway tunes. It made me smile in a moment that was otherwise sad.

Like many, my father’s struggle with Alzheimer’s was a long and gradual one, but that did not make it easier for him, and it didn’t make it easier for all of the people who loved him. We had to say goodbye over and over as parts of who he had been vanished like color from a beloved garment, never to be restored. Continue reading

Meet Karen Malena, author of Love Woven In Time

love wovenLove in the senior years: A true inspiration to me. My parents are married over sixty years as of this writing. Sixty years of ups and downs, good health and bad, happiness and sadness. But one thing remains: a steadfast love. It is this love that inspired me to write; theirs, and another couple: my husband’s elderly aunt and uncle. Continue reading

Meet Carol Howell, author of Let’s Talk Dementia

CarolHowell

My mother, Vera, was diagnosed with Alzheimer’s in October of 2006. That was the day my world changed – forever. I will never forget (or is that statement actually true?) the day I received the phone call. “Mrs. Howell, I am calling to tell you your mother has dementia.” The doctor lacked bedside manner, and he assured me he could call in medications that would make Momma better. Continue reading

Meet Marsha L. Burris, author of Miracles All Around Me

Miracles BookMy parents raised four children in a small community located near Charlotte, NC where they were active in social and church affairs. Jim coached Little League and Rusty directed the polling place in our precinct. My siblings and I grew up, went to school, and made life-long friends there. But then, gradually, negotiating the complexities of social interactions became more difficult for Mom and Dad and they withdrew from the activities they once enjoyed. Continue reading

Meet Tanya Ward Goodman, author of Leaving Tinkertown

tanyapromocoverI grew up in in the mountains of New Mexico in a roadside attraction built by my father.

With the exception of, “I love you,” I have probably spoken this one sentence more than any other. I defined myself as the daughter of Ross Ward, the man who created Tinkertown Museum.

I did not mean to write a book. After my father died from complications of early onset Alzheimer’s disease, I sat down with my journals to try to understand what had happened to me and to my family in a five-year period that began just before I turned thirty. Continue reading