In 2004, both my parents were diagnosed with dementia, Dad with Parkinson’s-related dementia and Mom with moderate Alzheimer’s disease. Even though symptoms had become increasingly obvious by the time of diagnosis, hearing the words dementia and Alzheimer’s disease really knocked the wind out of my sails. We now faced the stark reality of terminal diagnoses. Continue reading →
Both of my parents were diagnosed with Alzheimer’s on the same day. They were in their mid-eighties. I was the hometown daughter, working full time as a third grade teacher. My only sibling lived 1,000 miles away. Continue reading →
Writing a book about Alzheimer’s was not something I planned to do when I sat down to write my first novel. It was a lifelong dream to one day write a book, but I had something else in mind when I started typing. That story was going nowhere when I met the captivating couple that inspired me to write Blue Hydrangeas,an Alzheimer’s love story.
She was a beautiful 86-year old who was very confused when I, her case manager, met with her regarding her discharge plan from the hospital. “I’m so mixed up,” she said multiple Continue reading →
My name is Norrms McNamara. Someone once told me having Lewy Body`s Type Dementia is like having two diseases, you HAVE Dementia, and you KNOW you have Dementia. The same person, a Consultant, also told me that right up to the end of life, the person with Lewy Body’s will still have moments, if not hours/days of clarity. I lost both my Father and incredibly wonderful grandmother to Dementia. (I say that because she brought me up, I am who I am today because of her) Continue reading →
“Cobwebs in my mind!” was how my mother depicted the disease that ravaged her brain. Mom was diagnosed with Alzheimer’s and vascular dementia in May 2000, after episodes of TIA’s and early signs of dementia. She was 82 years of age. This was a major turning point in the life of our family. For me, it was the birth of a challenging new creative phase. Continue reading →
How does a romance writer end up writing a book about Alzheimer’s care? That question nearly stumped me, not because I don’t know how—I lived it—but because it’s a lot bigger question than it seems.
I’ve always written, always played with words and stories—ever since I was a kid. And romance has long been one of my favorite genres to read as well as write. It was a natural path to write romance when I started to focus on my fiction. Continue reading →
My goal in life was not to become a writer. I enjoyed writing when I was younger, and I toyed with the idea making a career of it until I received my first negative review from an English teacher. I don’t take criticism very well, and I took her comments very personally. Years later, though, after the sting of her rejection had faded, and especially when I became a caregiver, the need to express myself resurfaced. Continue reading →
According to Alzheimer’s International, globally, there are nearly 44 million people that have Alzheimer’s or a related dementia.
In America alone, there are 5.3 million living with Alzheimer’s disease. 74% of caregivers of people with Alzheimer’s disease and other dementias reported that they were “somewhat concerned” to “very concerned” about maintaining their own health since becoming a caregiver. Certainly these caregivers and their loved ones are in a health care crisis. Continue reading →
Unlike some caregivers who can draw upon their experience as a parent or time spent taking care of siblings when they were younger, I had no such reservoir of caregiving knowledge when my parents fell ill. An only child who lived 1,300 miles away from my parents, my father began showing signs of dementia while I was in my mid-thirties. Assuming the role of long-distance caregiver, I helped my mother by paying bills, sending supplies, and researching care options. Continue reading →
After five years in the making, writing this memoir has been one of the most intense endeavors I’ve ever taken on, but well worth it.
While I was writing this memoir I discovered how much pain I still had deep inside of me. Pain from some of the experiences. Pain from not knowing what or how to deal with dementia. Pain of not understanding what caregiving entails. Pain from dealing with the healthcare field. Finally, pain when it’s all over. Continue reading →