“To love a person is to learn the song that is in their heart and to sing it to them when they have forgotten.” This was written by Arne Garborg, a Norwegian writer, and has been my inspiration for many years. Even though I have worked with people with dementia most of my adult life, it was not until my father was diagnosed that I actually experienced the significance and value of learning one’s song. Continue reading
I write about Alzheimer’s because my father’s experience with the disease turned me into an advocate, not just for those with Alzheimer’s, but for their caregivers as well.
My father lived with Alzheimer’s disease for about four years. In that time, my father went from fully independent to living in a memory care center. My mother went from healthy and active to stressed and exhausted, and I believe the prolonged period of stress contributed to her colon cancer diagnosis, just six months after my father died. Continue reading
Fingers on the Keyboard, Heart on the Page
By Deborah Shouse
As my mother moved deeper into dementia, I treasured every moment of connection with her. Often it was only a minute or two, sitting shoulder to shoulder on the bench in the courtyard of the memory care unit, watching the community bunny rabbit nibble on grass. Leafing through a celebrity magazine and Mom pointing to George Clooney Continue reading
“To plant a garden is to believe in the future.” Anonymous
It was a spectacular day in my mother’s beautiful garden. And despite her recent decline from dementia, my mom, or “Nana”, walked happily together with my young daughter and I. My active 5-year-old girl skipped ahead through the now somewhat overgrown beds, but soon circled back with freshly picked blooms to share. Continue reading
Florida is the retiree mecca of the United States. As residents, we are used to conversations that begin with, “You live in Florida? My parents retired there…”. Yes, we know. Everyone’s parents retire here. My family was no different; we migrated after my grandparents retired here in the 1970s. Continue reading
by Rose Lamatt
When I found Carol’s little black date books in storage and my recordings of Carol’s fight with Alzheimer’s, I knew I needed to combine the two and write a book. That’s what I did, so others would know this awful disease.
In 1990 little was known about Alzheimer’s when the doctor called saying, “I’m sorry, Carol has a dementia disease known as Alzheimer’s.” She was sixty-four years old and I didn’t believe it. I had to fight my way in and out of the disease’s process to learn it. Being a gay couple, we didn’t run into many folks like us at caregiver support groups and felt this story needed telling. Continue reading