AlzAuthors Spotlights Writers on Alzheimer’s and Dementia During June, Alzheimer’s & Brain Awareness Month

Today begins #AlzAuthors month-long promotion of Alzheimer’s and Brain Awareness. You are also invited to visit our new website at alzauthors.wordpress.com. Throughout the month of June, #AlzAuthors will be sharing the limelight with other authors who write about dementia/Alzheimer’s.

by Marianne Sciucco

We are AlzAuthors, four daughters who have experienced the pain and loss of a loved one with Alzheimer’s disease or dementia. We know the pain of being forgotten. We have all witnessed decline. Most of us have provided countless hours of caregiving.

We chose to write about our personal and painful dementia stories to help others who may be on their own journeys. Our stories can serve as guides to the disease process, a caregiver’s handbook, or simply the catalyst to much needed conversations among families.

Although we haven’t met personally, we found each other through our books and became friends. Together we advocate for those with dementia and their families, providing education and awareness of a disease projected to affect 131 million people worldwide by 2050.

One year ago, we formed a collaboration to pool our talents, skills, and resources to raise awareness during June, Alzheimer’s and Brain Awareness Month. This campaign resulted in exposure across dozens of Alzheimer’s and dementia websites and blogs and social media, #AlzAuthors. We also held a Facebook event that has grown into a Facebook group.

We have come together again to continue our mission to educate and enlighten. Today we are launching a new blog, AlzAuthors, a space where those writing about Alzheimer’s and dementia can share their stories. Throughout the month we will feature a different author each day who will share what motivates him or her to write about Alzheimer’s and dementia. Our goal is to increase exposure of their books and blogs, and to enable Continue reading

Finding My Tribe

Aren’t you curious to know more? Why do you find this boring? If you could peer into my brain, you might observe these questions bouncing around.

DetailsI remember being admonished as a child for acting “too inquisitive” or alternately, “too sensitive.” As an adult I’m sometimes told that, in conversations, I either give too many details or ask for too many details, depending on whether I’m telling the story or listening to one. Or worse, I confess to interrupting someone else’s story (my husband) to add more details when I don’t feel he’s imparting enough information. Okay, so I like details! Watching movies, it’s not uncommon for me to be so engrossed in the details of the room decor or the characters’ clothing in period piece dramas, that I forget to listen to the dialog. My husband might call a movie a “yawner,” while I found it completely captivating in its minutia. And yes, I can be a bit on the obsessive side when it comes to journaling, particularly when traveling. I’m driven to record the details of our travel days, which actually sometimes comes in handy when we’re trying to remember the name of a particular place or where we stayed in any given city. While other people seek entertainment on their iPad, I’m busily recording the day’s events.

MI FarmI’ve long collected family memorabilia, particularly photographs. Some of these photos date back to the mid-1800s. I thoroughly enjoy studying the details in these old photos, imagining myself in that time period. My current work in progress is a fictional biography of my great-grandmother Maggie. For Continue reading